Hello all! I am back from my longest ever break from my blog. I decided to take a step away after I started to feel like things were getting on top of me. I have so much routine to my day, more than I will ever speak about, and we have been challenging so many different people to try and make decisions in my best interest – I just became a bit tired of everything I guess, and a little emotional.
Talking about the nicer things that have happened this month, I have bought a second hand sewing machine and am learning to sew. I am trying to develop some affordable pretty medical items. If you can think of any items that would be beneficial to you or anyone you know, let me know!
I performed at Borderlines festival, Lakes Alive, Spotlight and the in the Grasmere In-the-Round Theatre. It has been a full on month putting my body through the nights out, but goodness me it is so worth it. I love performing and writing poetry. It saves me in so many ways.
I have had a sizeable number of appointments, both near my home and a fair trek away. It is so worth it when the people you trust, and are personable. People are really trying to understand my condition and make it more comfortable for me. I have seen: The specialist dental service, the palliative care doctor, the palliative care nurse, the hospice near me’s physio, the urologist, the neurologist and my gastroenterologist, wheelchair assessment, District Nurses and the hospice for some lovely respite. I am not saying all of these for sympathy or anything like that. I’m just trying to say that on top of my daily grind I have appointments and other things that I must do in order to stay as well as possible. Some people think that my mum has quite an easy life looking after me, but it is all of the jobs that people don’t think about relating to serious illness. Ordering and drawing up medication, GP appointments, not being able to shower alone, needing help to get up and dressed.
I am going to be announcing a HUGE project over on my YouTube channel next week. I have applied for funding and it has come through. It is going to be amazing.