This week I went to the Cumbria Cultural Awards, a hospice and recognised feeding tube awareness week. I will start with the Cumbria Cultural awards. I went along to the awards with Kim Moore and Jenny Copley to represent the Kendal Poetry Festival for festival of the year, unfortunately we didn’t win, but we were […]
MoreI am fairly certain these weeks are whipping around quicker and quicker. Maybe it’s just because they are very eventful and we never seem to be given a week off! I am sat in the car park of my hospital, waiting to see my cardiologist. I had a scan this morning and now we have […]
MoreThis week has been an appointment free week (we will ignore today, I have two today!). It has been such a blast of fresh air but busier in most ways. We’ve been doing all of the jobs that have been stacking up. It feels like I work in an office and I’m working through the […]
MoreThis week has been a nice week. Minimal appointments (only one with a surgeon), some free time (unheard of!) and a feeling that things are moving in the right direction in regards to my care. I’ve been at school a few times in the last week. It’s quite strange, because I’m only there a few […]
MoreThis week has certainly been eventful! Five appointments consisting of: one visit to Kendal PCAS (Primary Care Assessment service), one GP visit, one community nurse visit, one Multi- Disciplinary meeting and one gastroenterology appointment. I went back to school yesterday after Christmas – that’s how many days off I’ve had to have. I’m feeling back […]
MoreI haven’t had the best of weeks, the truth be told. On top of my infection (we’ve been to hospital twice more this week…) I have a viral illness which is making me feel really poorly. It’s strange, and something I’ve never really read about before. It’s been suggested that I haven’t had a temperature […]
More*As the title suggests I have written this on a phone in the middle of A&E, so please don’t look too closely at spelling and grammar!!* Woah. I was all ready to write an inspirational post – all about looking forwards and not backwards and decided to leave the writing of this post until this […]
MoreYesterday, I decided to type ‘tube feeding at Christmas’ into google. NOTHING of relevance came up. There are thousands of people from all over the world who are tube fed. So I have decided to write this so that hopefully anyone who was looking for advice as I was, will have something to read. My […]
MoreI’m writing this in a lovely warm office, without a blanket or coat on. That might sound a bit odd, but my POTs syndrome makes me absolutely freezing. I’ve invested in an electric blanket for my bed and a really efficient heater for my office – it been absolute bliss. I’m just hoping the electric […]
MoreI went back to school yesterday (huzzah!) for half a day. Even though I sat in silence by myself in the library for virtually all of that time it was very refreshing to be around people again. School is good for making you feel like you’re doing stuff. I have a terrible memory and so […]
More