It’s been an eventful day – hence the very late blog post (I’ve still managed to post on a Wednesday though!). I’ve had so many telephone conversations today to do with health care, it has been a day where I have wished that we could unplug the phones. We have secured some funding for my […]
MoreThis week I am overwhelmed to say that I have hit 1,100 followers on YouTube. I can’t believe that something I enjoy doing so much, and something I get so much joy from, is yielding so many results. I started BookTube because I felt lonely. This was compounded this week as a close friend cancelled […]
MoreThis week has been another busy one, although we are still waiting for funding, services seem to be clicking into place which is such a relief. I went to see the palliative care doctor this week. He suggested a drug that may be able to help a little of my pain. If you could all […]
MoreI cannot believe how quickly the weeks are whizzing on by, everything seems so busy, but mind you a trip to the shop wears me out so please don’t take my word for it. I have been putting a lot of energy into my revision this week. I have created sound bites of me reading […]
MoreSo this week has been a lot less hectic than previous weeks. A real slow down – EXACTLY what I needed. I had a couple of things that I was supposed to do this week, but for one reason or another they cancelled. And you know what? I’m glad. I have become so exhausted […]
MoreHello all. I’m writing this from the hospice I got to for respite. It gives mum a well deserved break, the chance to relax a little and not worry about me for a little bit. It’s a nice break for me as well. I can leave all my school work at home and just come […]
MoreHello all! I’m currently in hospital. All of those who know me are aware that I was due to have a test to see where my tube was yesterday. Well, on Monday I stopped tolerating my tube feeds all together, so we both knew (mum and I) before the test that I was going to […]
MoreHello. This week has had its very high, very nice bits and it’s hard bits as well. Firstly, my wonderful high moment. I won the personal achievement award at the North West Cultural education awards! It was a huge shock. When mum and I were shown to our seats I realised that I hadn’t been […]
MoreHello all! I’m sure you are sick of me going on about this just as much as I am, but my feeding is still not right. I’ve had a letter from my consultant to say that I have a tubiegram (fancy name for an x-ray) on the 9th May. It feels like a very long […]
MoreWe’ve had a nice and chilled first week to the Easter holidays. We’ve been in contact with the hospital about my ‘just not quite rightedness’ but my consultant is away on leave at the minute, so we are sitting and waiting. I can now announce that I am on the shortlist for the National Memory […]
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